Going off the grid

Today I'm going off the grid. I'm leaving the kiddos with Mike and I'm off to do whatever I want. Peter is 6 months old and he's started rice cereal and stage 1 baby foods so he's no longer permanently attached to my boob. Olivia is running around the house giggling uncontrollably because she is getting to spend the day with daddy. It's a beautiful day and I can't wait! I have my purse (not my diaper bag) packed, a great new library book, and I'm wearing a regular bra instead of a nursing bra! I'm ready for anything. Lets see how long I last. Without an agenda and a to do list I'm worried that I'll be back home in a couple of hours but for now at least I'm off the grid!

I did eventually open the door

Just to satisfy your curiosity......

Olivia only spent about 15 minutes in the pantry. I was afraid to open the door, I was sure she made a huge mess but she didn't! She did move a few things around but she found the book bag full of library books to be returned. When I opened the door she was happily reading "Green Eggs and Ham" to herself and she told me to close the door! Maybe I should lock her in the pantry more often.



Of course this is a terrible picture but you get the point.

Don't want to open the door

Olivia locked herself in the pantry about 10 minutes ago. I can hear her bumping around in there but she's not asking me to open the door and she seems content. I don't want to open the door. I'm enjoying these precious minutes to myself and I don't want to clean up whatever she's destroied in there. I wonder how long this pantry business will last.....

Laying it all on the line....

We overnighted our appeal to TRICARE yesterday. We've enlisted the help of our elected representatives (a Senator and a Congressman from Washington and a Senator from Colorado) to assist us in encouraging TRICARE to make a decision on the transplant quickly. We've learned that once TRICARE makes a decision it is final, there will be no more appeals. This is it.....we're laying it all on the line.

Our case manager in our congressman's office thinks that we should be able to have a decision within 2 weeks.

Some of you know that we have been in touch with another family in the area with 2 kids with Sanfilippo Syndrome. You may have noticed their blog recently appeared on the "other blogs I read list". Their mom courageously decided to take it to the media and their story was on our local news last night. Here's the link to the story and the video below.

Insurance denies boy second chance at life