Team Sanfilippo, a group of parents who are committed to finding a cure for this horrible disease, is in the running for a $250,000 grant from Pepsi. For the entire month of January, people can vote for their favorite projects. The top finishers win the money. We want to use the money to fund a researcher at OSU, who is working on finding a treatment using Gene Therapy.
We need VOTES.
You can vote 3 ways - text, email and via facebook - each day.
I rarely solicit my friends and family but please consider taking a few minutes of your time each day this month to vote. Do it in honor of Olivia!
Below are the instructions for voting. I will leave these on the blog throughout the month so you can check back and vote each day. Please share this info on your blogs, facebook and twitter!
TO VOTE BY TEXT
Text the message "105582" to the number "73774" (stands for Pepsi)
TO VOTE ONLINE
Go to http://www.refresheverything.com/curesanfilippo and vote to Fund a Gene Therapy to cure Sanfilippo syndrome. You can use multiple email addresses to vote. It's my understanding that you get 10 votes per email address per day but you can only vote for a specific cause once. Once you are logged in there is a ticker at the bottom of the screen that shows how many votes you have left. After you vote please consider promoting the idea on Facebook or Twitter via the link on the top right.
TO VOTE ON FACEBOOK
Go to http://apps.facebook.com/pepsirefresh/idea/ if you are logged into facebook it will show a list of causes your friends are voting for and you will see Fund a gene therapy to cure the genetic disorder Sanfilippo syndrome by the Team Sanfilippo Foundation 501C3
Thank you for taking the time to support reseach to find a cure for Olivia. Happy Voting!
