V*I*C*T*O*R*Y

Thank you so much for your votes to help fund research to find a cure for Sanfilippo Syndrome! The final results were announced today and it's official! Team Sanfilippo will receive a $250,000 grant! Here's a link to the Pepsi Refresh Grant recipients in January: Pepsi Refresh Grant Recipients

Sunshine and High 70's

Seriously loving the North Carolina weather lately!

Undercover Boss

In case you missed it.........

The most recent episode of Undercover Boss brought national attention to Sanfilippo Syndrome. The CEO of Mack Trucks, Danny Slagle, went undercover to learn more about his company. In his undercover role he met with Al, the grandpa of our friends Waverly and Oliver, both of whom have Sanfilippo syndrome. CEO Danny is also a grandfather and he and Al bonded over the love that one has for their grandchildren. Al went on to tell Danny about more about the tragedy that is Sanfilippo syndrome. Al spoke eloquently! He brought much needed and appreciated attention to Sanfilippo syndrome. You can view the entire episode here:

http://www.cbs.com/primetime/undercover_boss/video/?pid=ntkp3mXNw_ZdTo7w1ocF2kWv_S6HdBQ7&vs=homepage&play=true

Mack Trucks also made a $5000 donation to the MPS Society that will go towards funding more research to find a cure for Sanfilippo syndrome.

So in the spirit of paying it forward I'm asking each of you for a favor. Please consider writing a quick note thanking Mack Trucks for their donation to the MPS society. Send to:

Denny Slagle
CEO Mack Trucks, Inc.
P.O. Box 26259
Greensboro, NC 27402

Someone got a haircut...

and a new pair of shades! (I know the pictures are terrible, I used my phone, but at least you get the picture, ha ha pun intended)