Life with The Leivas: I seriously cannot stop

Monday, November 3, 2008

I seriously cannot stop

This past weekend in addition to celebrating Halloween we continued our mission to organize the house. Mike is being such an understanding husband, I know that I am driving him absolutely crazy. He keeps trying to get me to rest and I keep finding random projects that I have to do. Over the weekend I ....

Re-arranged the living room furniture again
Took everything out of the kitchen cabinets and then put it back in the cabinets but this time it's much more organized
Washed 5 loads of laundry (we actually did have this much laundry, I didn't just wash clothes that were already clean, that really would be crazy and laundry isn't my favorite chore)
Took all the books off the bookshelves so that I could make sure the shelves were really clean before replacing all the books
Took everything out of the linen closet in the master bathroom, refolded and reorganized, and replaced it

I think I even inspired Mike to do a little nesting himself. He went through all of his army gear that had been stored in the garage and moved it to the closet in the guest bedroom. Now both cars fit in the garage!

1 comment:

Elena said...: Nesting nesting nesting. Not too much longer to go. Are you getting nervous?; Monday, November 03, 2008 4:15:00 PM

Post a Comment

MPS/Sanfilippo Syndrome

In October, 2008 Olivia was disgnosed with MPS III or Sanfilippo Syndrome, type B. MPS stands for: Mucopolysaccharidoses. It is a genetic lysosomal storage disease (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.

Babies and young children with Sanfilippo Syndrome appear normal, but symptoms begin to appear with age as more and GAGs build up in the cells of the body. There are 3 stages to the disease. Stage 1 the child begins to lag behind peers and begins to display difficult behaviors. Stage 2 the child losing his/her language, becomes hyperactive, chews on everything, and has sleeping difficulties. Stage 3 the child slows down, becomes dependant for all mobility and loses the ability to chew/swallow. There is no treatment or cure for Sanfilippo. Life expectancy varies.