Life with The Leivas: Shopping with 2 little ones

Monday, March 30, 2009

Shopping with 2 little ones

When Olivia was an infant I remember being so excited to be able to shop at the grocery store on my own. Those days of solo shopping are long gone and now I have two little ones to keep entertained. I've discovered the best invention of all time. I don't know why I never noticed these before. The other day we stopped off at the store for just a few things when Olivia politely said "Mama please ride" and pointed at the car/cart. How could I deny her? After all she said please. I had the most enjoyable grocery shopping trip ever. We will have to work with the steering with the feet thing :)

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MPS/Sanfilippo Syndrome

In October, 2008 Olivia was disgnosed with MPS III or Sanfilippo Syndrome, type B. MPS stands for: Mucopolysaccharidoses. It is a genetic lysosomal storage disease (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.

Babies and young children with Sanfilippo Syndrome appear normal, but symptoms begin to appear with age as more and GAGs build up in the cells of the body. There are 3 stages to the disease. Stage 1 the child begins to lag behind peers and begins to display difficult behaviors. Stage 2 the child losing his/her language, becomes hyperactive, chews on everything, and has sleeping difficulties. Stage 3 the child slows down, becomes dependant for all mobility and loses the ability to chew/swallow. There is no treatment or cure for Sanfilippo. Life expectancy varies.