Olivia is going to be a big sister! While Olivia is certainly the center of our little world this November she will have quite a shock as she adjusts to her new role as big sister. I'm well into my second trimester now and I'm thrilled to have more energy. The first 12 weeks were a blur of nausea and complete exhaustion. I think that I only threw up one time the entire time I was pregnant with Olivia but this time around it was a daily occurance. We are both very excited that Mike will be here for most of the pregnancy with the exception of a few extended trips to the field. Here's a picture from our first ultrasound a few weeks ago.
Olivia has many favorite foods, she loves scrambled eggs and peas and jello. She loves the stuff, can't get enough. She does get a little frustrated though because Jello is pretty hard for a toddler to eat. It's too slippery to pick up with her fingers and it's too slippery to stay on the spoon. Olivia gets so disapointed that she can't eat it that she resorts to trying to eat the jello like a dog directly from the table or bowl. While I realize that a 22 month old is not going to have perfect table manners eating like a dog is not acceptable so I help with the jello. Here's a little clip of Olivia enjoying her jello this past weekend. Notice the baby sign language for more (fingertips together) which is one of her favorite "words".
I know it's been a while. I was off to such a good start with the blogging but things have been crazy lately. Olivia spent most of last week in the hospital again with the same type of eye infection she had back in January. She's home now and we're finally getting back into our routine. The good news is that while we were in the hospital the doctors were able to do a lot of tests to determine exactly is causing these repeat infections. It turns out that Olivia's sinuses aren't developing properly, this is causing a sinus infection which can cause other infections, in her case she gets an eye infection. Now that they've identified the problem they are going to do sinus surgery in a couple of weeks. Olivia was a trooper and actually had a great time in the hospital, who knew it could be so much fun. There was a special room that only Olivia could go into (the locker where patients store their personal belongings) and the crib had magic walls (transparent guards to keep kids from climbing out). She had fun but we're so glad to be back home!
Recently we met some friends of ours at Chuck E. Cheese for dinner. The other couple we were meeting has a 2 and a half year old son who LOVES Chuck E. Cheese. We thought that Olivia was too young to really get into it but she suprised us by having a fantastic time and staying up way past her bed time to play. Here are some of our favorite pictures from Olivia's first trip to Chuck E. Cheese.
In October, 2008 Olivia was disgnosed with MPS III or Sanfilippo Syndrome, type B. MPS stands for: Mucopolysaccharidoses. It is a genetic lysosomal storage disease (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.
Babies and young children with Sanfilippo Syndrome appear normal, but symptoms begin to appear with age as more and GAGs build up in the cells of the body. There are 3 stages to the disease. Stage 1 the child begins to lag behind peers and begins to display difficult behaviors. Stage 2 the child losing his/her language, becomes hyperactive, chews on everything, and has sleeping difficulties. Stage 3 the child slows down, becomes dependant for all mobility and loses the ability to chew/swallow. There is no treatment or cure for Sanfilippo. Life expectancy varies.