Life with The Leivas: We Were There...

Sunday, October 30, 2011

We Were There...

We were there when

the Saints broke their record of the most points ever scored in a single game
the Saints won by the biggest margin in franchise history
Faith Hill was sitting at the game in a private box several floors below us
the very first game ever was played in the newly branded Mercedes Benz Superdome

I'm a full week behind in this post (and the Saints didn't do so well tonight) but last week Mike and I used my friend's season tickets and their awesome parking pass and went to the Saints game. We had a blast! And Wow things have changed since the Saints won the Superbowl in 2009. Mike had season tickets when he was in college and we went to a few games then but this was a completely different experience! We forgot the camera but I did accidentally take this picture while I was trying to balance texting, cheering, drinking my beer, and spilling my popcorn.
Who Dat!

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MPS/Sanfilippo Syndrome

In October, 2008 Olivia was disgnosed with MPS III or Sanfilippo Syndrome, type B. MPS stands for: Mucopolysaccharidoses. It is a genetic lysosomal storage disease (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.

Babies and young children with Sanfilippo Syndrome appear normal, but symptoms begin to appear with age as more and GAGs build up in the cells of the body. There are 3 stages to the disease. Stage 1 the child begins to lag behind peers and begins to display difficult behaviors. Stage 2 the child losing his/her language, becomes hyperactive, chews on everything, and has sleeping difficulties. Stage 3 the child slows down, becomes dependant for all mobility and loses the ability to chew/swallow. There is no treatment or cure for Sanfilippo. Life expectancy varies.