Life with The Leivas: I love this man!

Saturday, February 7, 2009

I love this man!

So Mike left this morning. I heard him quietly close the front door around 6 am and I just wanted to sleep until it's time for him to come home.

When I did finally drag myself out of bed I found the cutest surprise in Peter's bassinet, a stuffed valentines puppy dog. In Olivia's room she also had a valentines puppy dog and I got a cute picture frame. It absolutely made my morning!

I took some really cute pictures of Olivia and Peter with their early valentines presents but I can't find the cord to download the pictures from the camera so they'll have to wait till later. Instead here's our engagement picture, it was only 7 years ago but we look really young!

2 comments:

Elena said...: How sweet! Too bad we will all be alone this Valentines day.; Saturday, February 07, 2009 12:24:00 AM
Anonymous said...: ONLY 7 years ago?!?! i can't believe it's been that long, feels like yesterday to me!; Tuesday, February 10, 2009 5:11:00 PM

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MPS/Sanfilippo Syndrome

In October, 2008 Olivia was disgnosed with MPS III or Sanfilippo Syndrome, type B. MPS stands for: Mucopolysaccharidoses. It is a genetic lysosomal storage disease (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.

Babies and young children with Sanfilippo Syndrome appear normal, but symptoms begin to appear with age as more and GAGs build up in the cells of the body. There are 3 stages to the disease. Stage 1 the child begins to lag behind peers and begins to display difficult behaviors. Stage 2 the child losing his/her language, becomes hyperactive, chews on everything, and has sleeping difficulties. Stage 3 the child slows down, becomes dependant for all mobility and loses the ability to chew/swallow. There is no treatment or cure for Sanfilippo. Life expectancy varies.