Life with The Leivas: Fabulous Fall

Sunday, October 17, 2010

Fabulous Fall

We are all about Fall around here lately. I had a really hard time letting go of summer but I am thrilled that fall is here! I've pulled out the decorations and the kids and I had fun decorating together after school. Olivia was trying to eat spider webbing and Peter was chucking fake pumpkins all over the yard.

Peter is talking up a storm lately and has added several more seasonally appropriate words to his vocabulary including: "spider", "pumpkin", "feeves" (pronounced by the rest of us as "leaves")and "gobble gobble". I enjoyed my first Pumpkin Spice Latte of the season and Peter loves the Starbucks Pumpkin bread.

I've pulled out all my fall Bath and Body Works candles. Their fall scents are definately my favorite! I love them all! I've cleaned out the kids closets and replaced the short sleeved PJ's with the ever adorable footie PJ's.

And last but not least we've embraced football! We all are enjoying watching football. Peter and Olivia get into it by chasing each other around and tackling each other. This is the perfect fall football song. I happened to finally see the video the other day and I loved it so much that I had to share!

2 comments:

Shannon said...: Wavey has a 2 piece pj set in the Hippo pattern from Carters. :); Monday, October 18, 2010 4:06:00 PM
Brandy said...: You are such an amazing mom! I don't know how you do it. I have a mixture of summer and winter clothes everyone in there rooms spilling over the dresser. I wish I was as organized as you are lady!; Monday, October 18, 2010 4:25:00 PM

Post a Comment

MPS/Sanfilippo Syndrome

In October, 2008 Olivia was disgnosed with MPS III or Sanfilippo Syndrome, type B. MPS stands for: Mucopolysaccharidoses. It is a genetic lysosomal storage disease (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.

Babies and young children with Sanfilippo Syndrome appear normal, but symptoms begin to appear with age as more and GAGs build up in the cells of the body. There are 3 stages to the disease. Stage 1 the child begins to lag behind peers and begins to display difficult behaviors. Stage 2 the child losing his/her language, becomes hyperactive, chews on everything, and has sleeping difficulties. Stage 3 the child slows down, becomes dependant for all mobility and loses the ability to chew/swallow. There is no treatment or cure for Sanfilippo. Life expectancy varies.