Life with The Leivas: August

Tuesday, August 2, 2011

August

Are you one of those people who loves shopping for school supplies? Does your heart skip a beat when you see brightly colored notebooks and freshly sharpened pencils? Do you love the smell of a new box of crayons? Yeah, me either. :)

I am so not ready for summer to end, I feel like there are a million things I wanted to do this summer. The weather is still on my side, we're still enjoying triple digit temps but the calendar is a different story. I cannot believe it's August already! I have found the perfect solution to my end-of-summer blues. A couple of weeks ago Mike and I were walking through downtown Fayetteville and we popped into one of my favorite little stores here. It's a good old fashioned gift shop with tons of breakable stuff so I rarely go in. Imagine my delight when I saw the beautiful display of Lilly Pulitzer agendas.

It's an August 2011 to December 2012 agenda so it really is a great investment (of that's what I told Mike to convince him I had to have said agenda). And the shop offers a military discount and my military guy is a sucker for that 10% discount.

I have acutally been counting down to August 1st for the last 11 days just so I could use my new agenda!

No comments:

Post a Comment

MPS/Sanfilippo Syndrome

In October, 2008 Olivia was disgnosed with MPS III or Sanfilippo Syndrome, type B. MPS stands for: Mucopolysaccharidoses. It is a genetic lysosomal storage disease (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.

Babies and young children with Sanfilippo Syndrome appear normal, but symptoms begin to appear with age as more and GAGs build up in the cells of the body. There are 3 stages to the disease. Stage 1 the child begins to lag behind peers and begins to display difficult behaviors. Stage 2 the child losing his/her language, becomes hyperactive, chews on everything, and has sleeping difficulties. Stage 3 the child slows down, becomes dependant for all mobility and loses the ability to chew/swallow. There is no treatment or cure for Sanfilippo. Life expectancy varies.