Life with The Leivas: Soccer Star

Sunday, December 11, 2011

Soccer Star

Mike signed Peter up to play soccer on Saturday mornings. It isn't really a league, it is more like lessons for 3 year olds. The parents are involved (except in Peter's case when he told Mike he wanted to do it by himself), they teach the fundamentals. The goal (pun intended) is to teach the kids the basics and get them to a point where they can have a scrimmage at the end of the season. Do we have a future soccer star on our hands....who knows but it will be a fun journey!

Peter's First Goal
http://www.youtube.com/watch?v=v9pRIkcRO48&feature=youtube_gdata_player

Learning to keep his hands off the ball
http://www.youtube.com/watch?v=BRKRxjZZ8QY&feature=youtube_gdata_player

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MPS/Sanfilippo Syndrome

In October, 2008 Olivia was disgnosed with MPS III or Sanfilippo Syndrome, type B. MPS stands for: Mucopolysaccharidoses. It is a genetic lysosomal storage disease (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.

Babies and young children with Sanfilippo Syndrome appear normal, but symptoms begin to appear with age as more and GAGs build up in the cells of the body. There are 3 stages to the disease. Stage 1 the child begins to lag behind peers and begins to display difficult behaviors. Stage 2 the child losing his/her language, becomes hyperactive, chews on everything, and has sleeping difficulties. Stage 3 the child slows down, becomes dependant for all mobility and loses the ability to chew/swallow. There is no treatment or cure for Sanfilippo. Life expectancy varies.