Life with The Leivas: Goodbye Curls

Saturday, October 30, 2010

Goodbye Curls

We waited as long as we possibly could. He was being mistaken for a girl. His hair was longer than Olivia's. He had ringlets. It was time! But I miss those sweet baby curls. My little boy is growing up too fast!

The before.

The after.

I can eat with a spoon all by myself and I love mashed potatoes!

Enough with the pictures Mom.

1 comment:

Brandy said...: Oh so cute haircut! The only reason he was mistaken for girl was because of that beautiful hair because now he really looks all boy.; Sunday, October 31, 2010 11:50:00 PM

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MPS/Sanfilippo Syndrome

In October, 2008 Olivia was disgnosed with MPS III or Sanfilippo Syndrome, type B. MPS stands for: Mucopolysaccharidoses. It is a genetic lysosomal storage disease (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.

Babies and young children with Sanfilippo Syndrome appear normal, but symptoms begin to appear with age as more and GAGs build up in the cells of the body. There are 3 stages to the disease. Stage 1 the child begins to lag behind peers and begins to display difficult behaviors. Stage 2 the child losing his/her language, becomes hyperactive, chews on everything, and has sleeping difficulties. Stage 3 the child slows down, becomes dependant for all mobility and loses the ability to chew/swallow. There is no treatment or cure for Sanfilippo. Life expectancy varies.