Life with The Leivas: Halloween Part I, The Class Party

Monday, November 1, 2010

Halloween Part I, The Class Party

Olivia had her class party at school on Friday. Mike was able to get off early so we were all able to go. After the week we had last week dealing with school issues it was really nice to be able to have such a fun and positive experience at school.

I made this fabulous Halloween Chex Mix (recipe here) to bring for snack. It was a huge hit and I think it will become an annual family Halloween favorite.

And these adorable treat bags that Peter helped me stuff.

We were able to share a fun Halloween snack with the class.

Olivia spots a cupcake that was left unattended.

Peter fits right in, he wants to go to school with Olivia! Peter also likes the pretty girls!

Then we got to see dance time in the circle.

Then we all settled in for story time before heading outside to the playground.

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MPS/Sanfilippo Syndrome

In October, 2008 Olivia was disgnosed with MPS III or Sanfilippo Syndrome, type B. MPS stands for: Mucopolysaccharidoses. It is a genetic lysosomal storage disease (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.

Babies and young children with Sanfilippo Syndrome appear normal, but symptoms begin to appear with age as more and GAGs build up in the cells of the body. There are 3 stages to the disease. Stage 1 the child begins to lag behind peers and begins to display difficult behaviors. Stage 2 the child losing his/her language, becomes hyperactive, chews on everything, and has sleeping difficulties. Stage 3 the child slows down, becomes dependant for all mobility and loses the ability to chew/swallow. There is no treatment or cure for Sanfilippo. Life expectancy varies.