Day +120 (for real this time)

Today is actually the real Day +120 and it happens to be my birthday. It was a pretty short day in clinic. We got there a little bit after 9am. Today Olivia's labs looked good, her potassium is a little lower so she'll probably need to get some tomorrow in clinic but her sodium is great. She didn't need any IV fluids today so it was a nice birthday surprise not to have to spend a few hours in the day hospital. She did eat and drink more today. Unfortunately she's just not interested in drinking anything other than water but at least she's starting to drink something. Today we got home from clinic in time for Olivia to take a real nap. She and I snuggled up and took a nice afternoon nap together. It's clear that Olivia is feeling much better but she's still not back to her happy self. Unfortunately I'm also starting to see some of the negative effects of Olivia being back on the high dosages of steroids. She's having some "roid-rage" temper tantrums and her legs and stomach muscles seem a little weaker. Hopefully she'll only have to continue the high dosage IV steroids until Monday and then she'll be able to go back to the lower dosage oral steroids. We'll have to make a trip into clinic on Saturday for more IV fluids and most likely potassium and magnesium but hopefully that will save us a trip on Sunday.